Tuesday, July 26, 2011

Last Day of Radiation: Time to Celebrate

Thank you for praying for and caring about Nathan these past six weeks. Today was the last day of radiation, so we headed straight for the amusement park right after it was done. If ever a boy earned some fun time, it would be him!

Now what? He will have an MRI in two months to see what effect the radiation had on the tumor. It will take six months to two years to see if the radiation damaged his eyesight, memory or endocrine function. Most of the dying of cells (tumor or normal brain) happens 3 - 9 months after radiation. So please continue to pray for our brave boy and for endurance for all of us.

















Wednesday, July 13, 2011

Cousin Time is Good Medicine

With cousins visiting, Nathan was not outnumbered by the girls. So they took advantage of the time by lots of whittling, sword fighting, Star Wars watching, and, of course, chicken chasing.

Nathan is starting to lose hair and now has a bald patch on the side of his head. We'll probably have to do a military cut or just shave his head. He is taking it in stride. Two weeks to go.











Tuesday, July 5, 2011

Freedom

On the way to see fireworks one of the kids asked why people get drunk on the 4th of July. We jokingly answered that they are celebrating their freedom. Nathan thought for a second, then said, " But if someone is drunk, they are not free." We thought that was kinda profound. He had the 4th of July off of radiation, and we celebrated our freedom in more ways than one. So far he is tolerating the treatments well and I don't have much to report. Just thank you for caring about him and us. At this wishing well I asked him if he had a wish and he said "no". "Really?" After a second he said, " Oh, yeah," and he put his money in.





Monday, June 27, 2011

So Relaxed, He Fell Asleep



Sorry it's taken a while for me to write another update. This last week has been so, so busy, and our computer was out of commission for a few days. So far, Nathan is feeling well and having no trouble with the radiation except feeling nauseous now and then. Today halfway through the treatment he fell asleep. I think it's pretty amazing that he could be so relaxed that he could just drift off. As I sit there watching him on the screen and praying for him, it's comforting to know that others are praying too.

Sunday, June 19, 2011

Father's Day Fun

We all survived the first week of radiation. Nathan finds the 20 minute procedure "short" and goes through it without any nervousness that I can see. On Fridays he gets to pick a toy from the treasure chest, and he had in mind that he wanted to get a transformer for his friend who likes transformers. It made us happy to see him thinking of others, and it turned out that it was just the one his friend had been wanting.
It's nice to have the weekend off from the two hours of driving to and from the hospital. The children have been enjoying having their Papa here for a visit, and doing things with him like going to the rodeo, shooting BB guns, and going for ATV rides.




















Wednesday, June 15, 2011

day 1



The first day of radiation is behind us, and six weeks are ahead of us.



Nathan bravely handled this new experience. He lay still with the plastic mask pinning him down to the table - this is to hold him in the same position for every treatment. We bring CD books for him to listen to during the 20 minutes, and his request was HOMER PRICE, a story that makes all of us smile.


Most children don't feel any different during the first week or so. Nathan came home and played cowboys and Indians with the neighbors and his sisters.


We took in this sunset last night.

Tuesday, June 14, 2011

Pray For Nathan Today










Today at 2:30 Mountain Time, Nathan will have his first radiation treatment. Then it will be every day, Mon - Fri for the next six weeks at 2:00. Please pray for him and for us.

Nathan has not spent the last few days sitting around worrying. As I write this, before we head out, he is happily riding a toy ATV around outside.



Here are some pictures from this morning, and from this weekend, when some people from our church came over to our house for a work day. Lots of big jobs got done, including building the chicken run.

Thursday, June 9, 2011

Testing Day

First, we want to thank you for all the sweet encouraging emails, calls and messages. This is a heavy time for us, and knowing that people are caring and praying makes it easier to bear.
Nathan was a trooper and a very brave boy yesterday. In the morning for almost two hours he had I.Q. testing done, to establish a baseline before radiation begins on the 14th. In the afternoon we met with his oncologist. Nathan had asked the day before, "What if the radiation doesn't work?" Aaron asked him if he was worried about that. He replied that he didn't want to worry about it. And we are seeing that he is purposely choosing not to. When asked the same question the good doctor got teary and said that he would move heaven and earth to find something that would help him.

At the end of the day we met with the doctor who will be doing the radiation. Nathan got teary and then so did we when the doctor told him that his vision might get damaged and that he might have a harder time learning because of the radiation. Then he had to lie still while they put hot plastic mesh on his face and shoulders, and wait for it to cool down and harden. This will be the mask he will wear for every treatment to keep him in the same position. Not the easiest procedure, let me tell you, but he handled it so well.

If you could remember us on Tuesday the 14th at 2:30 for his first treatment, we would appreciate it.

Here are some photos from this last weekend. The kids had fun chasing chickens, and Nathan had his first experience riding the neighbor's horse.










Friday, June 3, 2011

Distressing Turn of Events


It's been two months since Nathan's seemingly successful brain surgery. We breathed a sigh of relief, thinking he was spared from having to have radiation. But the tumor has grown with a vengeance and his life will be in danger if it continues to grow at this rate.



On the 8th he will have a "mask" made so that he will be in the same position during the treatments, which will be for 6 weeks, Monday thru Fri. Treatments start on June 14th. We would be thankful if you would pray especially on those days and during the six weeks.


The risks from the treatment are that he will most likely lose endocrine/pituitary function and will have to take hormones all his life. His vision could be damaged, and his learning ability. He will be at a higher risk of developing a cancerous brain tumor later in life.



Nathan is facing this bravely and with trust in God. He is a precious boy and teaches me daily. Our family has been trying to memorize the first chapter of James, and this is where it becomes real. This is what Nathan and his sisters have memorized so far, complete with hand motions- (you ought to see them):

"Consider it all joy, my bretheren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, that you may be perfect and complete, lacking in nothing. But if any of you lacks wisdom, let him ask of God, who gives to all men generously and without reproach, and it will be given to him. But let him ask in faith, without any doubting. For the one who doubts is like the surf of the sea driven and tossed by the wind. For let not that man expect that he will receive anything from the Lord, being a double-minded man unstable in all his ways." (vs. 1-8)......."Blessed is a man who perseveres under trial; for once he has been approved he will receive the crown of life, which the Lord has promised to those who love Him." (vs. 12)

Friday, April 29, 2011

NATE TURNED EIGHT!





Nathan is a favorite with all the chicks.







The elk made a birthday appearance - the first time we've seen them here.




Maybe putting Samson on the cake wasn't such a good idea. Does he stink?

Please permit me a little poetry:




Today is the wedding day

of William and Kate,

but the big news in our house

is that Nathan turned eight!



We're gr8tful for what God has done,

and for his health and life,

and we hope that one day

he'll marry a princess kind of wife.

Thursday, April 14, 2011

"Neurological Stimulation"

Here's some photos from today. One week ago Nathan was in Intensive Care following his brain surgery. This morning, he was lying by the fire listening to Dania read him a story. He is sometimes frustrated by me not letting him do all the things he wants to do, like going sledding today, but I tell him that just being home is better than being in the hospital. He is eating like a horse, which makes me quite happy.
Yesterday when I told him that he should probably have a nap, he said that he had enough rest in the hospital, and besides, he had a five hour nap during his surgery. Of course I said that didn't count.
Immediately following the surgery on the way to see him, in my heart I just wanted to know that he could see, talk and think normally. He was very thirsty but the nurse would only allow him a few ice chips. As I was moving around the ice chips with a plastic spoon Nathan said, "Mom, don't try to get the smallest one."
The day after surgery while he was resting in ICU, I asked him if he wanted to watch something on the T.V. He made me laugh when he said, "That would be too much neurological stimulation", quoting our favorite character from the movie The Incredibles - Kari the babysitter.
The incision is healing up nicely.

Sunday, April 10, 2011

Nathan's Surgery Before & After Pictures

Nathan got admitted to the hospital last Saturday, since they wanted him under observation and on steroids until his doctors returned on Monday. He spent his time practicing tying knots, and we walked around the hospital and met with visitors. He seemed to be getting weaker by the day. He was extraordinarily brave, and encouraged me by saying, "God will work everything out" - his paraphrase of Romans 8:28 : "And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose."
Nathan's neuro-oncologist met with us before the surgery, and told us that the best he hoped for was that the surgeon could remove enough of the tumor that it would buy us time to try an experimental drug. If that didn't work, then he would have to have radiation, which would cause some amount of permanent brain damage. We were devastated, but continued to pray and trust God's purposes. Hundreds or maybe thousands of people were praying for Nathan and his doctors. He said a few months more and the tumor would cause permanent brain damage also, and that the surgery might cause damage.
We took advantage of nice weather the day before surgery and spent the day outside. Lots of calls and texts, but didn't want them to take away from enjoying this day with our boy, not knowing what tomorrow would bring.
We prayed that God would guide the surgeon's hands and mind, and that He would do more than we could ask or think, and He did! The surgeon was able to see the optic nerve and other critical areas to stay away from, and he was able to remove 75% or more of the tumor. The morning after surgery, Nathan wanted bacon and eggs for breakfast.
When he got out of intensive care and back into a regular room, we watched one of our favorite movies, "Sargeant York". To quote a line from the movie: "The Lord takes care of them that are a-believin' in Him."
Getting ready to go home, three days after brain surgery. Aaron managed to pack all his stuff on one wagon.
Went out for a fabulous lunch at the Old Blinking Light restaurant on the way home. Our waiter's mother had passed from brain cancer, and he was very touched by Nathan.
Here is Nathan on Sunday, the day after he came home. He painted a bird house. We are realizing that keeping him down will be the hard part of recovery.


Thank you, all of you who have prayed for Nathan, and supported us through a very difficult time. We would love to hear from you.

Tuesday, March 1, 2011

Happy Birthday Melissa!

Taking "Flat Stanley" to visit the horses.

The baby of the family is growing up.


This is what Nathan does with birthday balloons......